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post #1 of 24 (permalink) Old 09-01-2006, 04:35 PM Thread Starter
 
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Got some AWESOME news...

As some of you may know, my oldest daughter was diagnosed with a terminal genetic illness (Hurler syndrome) in 2003. She had a bone marrow transplant in the summer of 2003.

Normally, kids with Hurler syndrome, if they manage to survive, have lots of problems and mental retardation etc...

Since yesterday, Yasmine is officially medication free. All organs (specially the heart) is normal, skeleton is OK, and she scored 114 on an IQ test, meaning her intelligence is well above average

She's developing great, and doing everything a kid of her age is supposed to do. The doctors are at a loss, and she's the first Hurler syndrome kid who is doing this well !

Hurler kids usually have a very pronounced physical appearance, but she's doing OK... Sure you can still see there's something out of whack, but to the untrained eye...

This is better than winning the lottery !
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post #2 of 24 (permalink) Old 09-01-2006, 04:37 PM
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That's awesome bro! We're really glad to hear Yasmine is doing that great! Give her a hug for us and tell her we're looking forward to meeting her next year. :


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post #3 of 24 (permalink) Old 09-01-2006, 04:40 PM Thread Starter
 
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PS: anyone that photoshops this is going to wish they were never born

We're looking forward to seeing you again too bro. Beers @ the beach are on me
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post #4 of 24 (permalink) Old 09-01-2006, 04:40 PM
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That's great news for your family.


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post #5 of 24 (permalink) Old 09-01-2006, 04:41 PM
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Good news!
post #6 of 24 (permalink) Old 09-01-2006, 04:43 PM
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I believe Corey already made it clear that if you photo shop family pics like yours, they would be banned.

Besides I doubt anyone is that heartless.



Quote:
Originally Posted by 04R1Belgium View Post
PS: anyone that photoshops this is going to wish they were never born


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post #7 of 24 (permalink) Old 09-01-2006, 04:44 PM
 
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Thats awesome bro!!
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post #8 of 24 (permalink) Old 09-01-2006, 04:44 PM Thread Starter
 
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Quote:
Originally Posted by Biga View Post
I believe Corey already made it clear that if you photo shop family pics like yours, they would be banned.

Besides I doubt anyone is that heartless.
Have an e-beer on me :laugh
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post #9 of 24 (permalink) Old 09-01-2006, 05:07 PM
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Great news


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post #10 of 24 (permalink) Old 09-01-2006, 07:14 PM
 
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awesome to hear bud.....
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post #11 of 24 (permalink) Old 09-01-2006, 07:17 PM
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That's great news Alex........... I'm happy for you and your daughter.



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post #12 of 24 (permalink) Old 09-01-2006, 08:23 PM
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I've never had to respond to this kind of news, so i kinda don't know what to say but, i'm truly happy for Yasmine that she's doing soo good. I'm also happy for you and your family now that you don't have to worry as much. Like eveR1ast said, give her a BIG hug from all of us too!
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post #13 of 24 (permalink) Old 09-01-2006, 08:42 PM
 
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Thats great news, every once and a while you someone smiles down on us, I am glad you and your family got a ray of sunshine.
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post #14 of 24 (permalink) Old 09-01-2006, 09:08 PM
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Awesome!!! I'm truly happy for your family. It's nice to hear great news like this!!


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post #15 of 24 (permalink) Old 09-01-2006, 09:28 PM
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God bless you and your family Belgium.........


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post #16 of 24 (permalink) Old 09-02-2006, 04:06 AM
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Awesome indeed Alex.
I sure know what your feeling because my daugther is still not needing oxygen during the day (it's bee almost a month now)

I guess we're finally having some time to breath

Go Yasmine
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post #17 of 24 (permalink) Old 09-02-2006, 04:41 AM
 
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Awesome news man! :badg


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post #18 of 24 (permalink) Old 09-02-2006, 10:50 AM
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Quote:
Originally Posted by 04R1Belgium View Post
PS: anyone that photoshops this is going to wish they were never born

We're looking forward to seeing you again too bro. Beers @ the beach are on me
Excellent news Belgium. If the docs can work out how she has recovered so well, it would be a huge bonus to other families. Great news


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post #19 of 24 (permalink) Old 09-02-2006, 11:20 AM
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Quote:
Sure you can still see there's something out of whack
Just by looking at the picture I would have never thought anything... congrats man, I'm really glad to hear that!!


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post #20 of 24 (permalink) Old 09-02-2006, 11:36 AM
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Great news....for the parents and for the ppl that have it to believe there always hope i think


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